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Ethical and Psychosocial Considerations in Informing HIV-Exposed Uninfected Children That They Were Exposed to HIV and Antiretroviral Medications In Utero

Klitzman, Robert L.; Mellins, Claude; Philbin, Morgan M.; Abrams, Elaine J.

We build on what is known about the potential long-term health effects of perinatal antiretroviral medication exposure to examine ethical and psychosocial issues associated with disclosure by applying lessons from other health conditions, theories of child and adolescent development and rights, and the relevant literature and legal contexts.

We present 2 cases to highlight potential issues; apply a bioethical framework that includes principles of autonomy, beneficence, nonmaleficence, and justice; and explore other factors, including the current uncertainty about these exposures’ possible long-term health risks.

This ethical framework can help clinicians and researchers consider and balance relevant concerns in deciding whether to inform offspring of HIV and related exposures.

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Also Published In

Title
American Journal of Public Health
DOI
https://doi.org/10.2105/AJPH.2016.303257

More About This Work

Academic Units
Epidemiology
Pediatrics
Psychiatry
Published Here
July 22, 2020