2008 Articles

Disclosure of Information to Potential Subjects on Research Recruitment Web Sites

Klitzman, Robert L.; Albala, Ilene; Siragusa, Joseph; Patel, Jignasha; Appelbaum, Paul S.

We examined systematically how a sample of Web sites that recruit participants for research on particular diseases present studies to potential subjects, exploring the presence of information about research benefits, risks, procedures, and incentives, including monetary incentives. Such data can elucidate the degree to which federal guidance is being followed and may have potential implications for policy, suggesting areas that IRBs, policy-makers, and regulators may want to consider further regarding online recruiting of research participants